Webcast - NeoNiche Innovation Chats
Episode 1 Webcast: Parents in the Mix, Co-Creating Care and Research
A chat with Dr. Susanna Sakonidou and Dr. James Webbe of Imperial College London, Chelsea and Westminster Hospital. Learn about their exciting initiatives BUDS and COIN and how they are crowdsourcing parent feedback and co-creating solutions for better preemie care.
Our Guests
Clinical Research Fellows and Paediatric/Neonatal subspecialty Doctors at Imperial College London
Dr Susanna Sakonidou
Susanna is a neonatal trainee doctor who is currently completing a PhD research degree at Imperial College London looking at how routine data can be used to involve parents more in their baby's care and improve their experience of neonatal care. She is leading the Project Better Use of Data to improve parent Satisfaction (BUDS).
Originally from Thessaloniki, Greece, Susanna came to London in 2001. She studied medicine at King's College in London and has trained in paediatrics and neonatology in London.
The BUDS project is developing a mobile phone app that uses routinely entered electronic health record data to provide individualised daily updates to parents with babies that need neonatal care.
Dr James Webbe
James is a paediatric trainee doctor who is currently completing a PhD developing a Core Outcome set in neonatal medicine at Imperial College London. He is leading the Core Outcomes In Neonatology (COIN) project. Having grown up in Jersey, James studied medicine at Cambridge, he completed his Foundation training in South Shields before coming to London to train in Paediatrics.
COIN will identify the outcomes of neonatal care that matter most to patients, parents and clinical staff to help improve current data collection and guide future research. It will be linked to the data collected during routine care of sick babies ensuring it can be used widely without imposing any additional burden on care teams.
@Buds_Study
www.facebook.com/Budsproject
UK families help co-create the App by sharing your NICU experience and insights. Please contact Dr Susanna Sakonidou by email: s.sakonidou@imperial.ac.uk
Episode Resources
- Parents’ experiences of neonatal care: Findings from Neonatal Survey 2014.
- Support Overdue: Women's experiences of maternity services 2017
- Avoidable waste in the production and reporting of research evidence
- Health, Wealth, Social Integration, and Sexuality of Extremely Low-Birth-Weight Prematurely Born Adults in the Fourth Decade of Life
